(Guest Post) 3 Lessons I Learned from a Catheter

This post is my father, John Riley‘s, words. If you’ve heard him speak you will be able to hear him within these writings. I hope he will continue talking about the lessons he’s learning through his personal journey into grief that began in the Fall of 2015 after the sudden death of his brother, Buddy. As long as he keeps telling stories, I’ll keep typing. 

Our hope is that these raw renderings will provide some much-needed relief and hope to those who are new to pain and loss. The ones among us who suffer silently while wishing for the person who understands to share their experience so they can say, “Really? Me too!”

I would encourage you to listen to the newly added audio with dad reading the post. Hearing a story read by its author gives it the ability to come alive. It will also give you a glimpse into why he is such a gifted communicator.

CatheterWhen someone in a white lab coat with the letters M.D. on the end of their name that’s stitched on the pocket, starts talking about you and a catheter in the same sentence, it’s sobering.

Once you get to thinkin’ about the reality of the proposed solution for what you hope is a temporary problem, it can really getcha down.

So… you have conversations… with said catheter and you get real honest.
It may sound something like this, “You and I are not going to be friends but, we’ll put up with each other as long as we have to and then we’re through!”

For me, it was only a month.
For many, it can be the rest of their lives.

Now y’all, that’s serious.

I don’t mean this to be too light hearted. It’s just that, trying to learn from it was better than cryin’ and cussin’ and carryin’ on… I suppose.

So, here are three things I learned from my catheter.
Excuse me, THE catheter.
I never wanted to own the thing.

1.- Pain can have benefits… if you let it.

Well, shoot! It’s hard to say what the benefits are because I can’t really think of many, but mainly you appreciate times of no pain.

After two weeks when I was told by my doctor (who is absolutely fantastic), “Sorry, we have to wait another week and another test.” I was upset. I had to process it.
It was only then that I could be thankful for this thing, discomfort and all, making it possible for me to heal inside.

So, I was extremely grateful that I was improving and that the greater percentage of my body was pretty healthy.

I also found gratitude for whoever invented the catheter. (That sounds weirder than I thought it would.) But seriously, I got really thankful for all the lives this person saved, including mine. Without this dang catheter, I would have already exploded five times over! Now, that’s enough to make even me grateful.

2.- Compassion has been defined as entering into the sorrows of another person and thereby showing mercy. I think that’s the way it goes?

How could I possibly enter into someone’s sorrow when I had never had the same sorrow?

I have been through the deaths of… well… everybody in my family older than I am, but this was my first time with a catheter. Now I can really feel for someone who has to have this great invention for a day, or for life.

Also, it teaches me that even though I don’t know personally what someone else is going through, I can know that it’s hard… even though I’ve not experienced the same thing. I thought I understood what it meant to be empathetic, but I’m not sure I ever truly have… before this. I hope that I will never again be unconcerned about another person’s problem.

3.- Make adjustments

By this, I don’t just mean which leg to put the bag on… but everything… well almost everything, you’ve done for many years.

Here are just a few that I have learned… fast… ’cause I didn’t have a choice.

Sleeping – don’t move around much. Get accustomed to sleeping on your back and your side. It’s not bad… except for sometimes… when it is.

Shower – unplug, clean, replug, dry… always makes ya feel better.

Dress – got me a whole new set of underwear, relaxed and unrestricted.
I didn’t realize boxers could be so comfortable! Wear ’em all the time now.

I have some that look like shorts, but the other day at my little community bank I go to, my friend the loan officer told me he could tell they were underwear. Oh well…

Loose pants are my friend. Especially sweat pants. But on days when the temperature in Alabama is 85 degrees, it looks kinda weird. So… I just stayed at home a lot.

Walking – was sometimes pretty easy, annnnd sometimes not.
Most of the time it felt like I was walkin’ with my legs spread like I just got off a horse. Nobody seemed to really notice except for one friend who did say to me, “Why are you walkin’ so funny?!”
“It’s a long story!” I thought to myself. I have lots of conversations in my own head these days. Know what I mean?

Exercise – wasn’t on the agenda. Every day made me look forward to the time I could really start back exercising and made me feel a deep concern for those who never can.

So, the catheter has taught me to be open to learning new ways of doing things. As I get real close to being 70 years of age, it makes me realize I want to keep growing.

Considering these three things, I hadn’t really thought of it, but maybe the catheter was my friend? However, I’m not gonna have it framed and hang it on the wall. (Can you imagine?! Yuck!)

What are you going through that people can’t necessarily see, but is making a huge impact in your everyday? Has it taught you a kind of gratitude that you never knew you wanted to learn?

When This Isn’t “The Most Wonderful Time of the Year”

If you’re reading this, I’m guessing you were drawn in by the title, either because you are feeling bombarded with all the “cheer” while not feeling the happiness that others expect you to feel during this time of year, or because you are curious as to why anyone would not see this as the best month of all 12.

No matter which position I have found you in, I’m asking that you relinquish all expectation of what this post is about and be present as your eyes scroll the words and your brain processes the thoughts.
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It’s everywhere. The way we “should” be feeling. How we “should” be thinking. What we “should” be buying…

So what do we do when none of our feelings encompass all of the “should(s)” placed on us, and the last thing we feel is “cheerful“?

I have been given the gift of “burden bearing.” I haven’t always thought it a gift and at times tried to mask or ignore it all together. It has only been recently that I’m learning to embrace it and see it as a blessing rather than a curse.

The transformation started several years ago when Katie was 14 weeks pregnant with her 3rd child. Her baby was given the fatal diagnosis of Trisomy 13. On December 19, 2011, at 10:45 a.m., Hallie Lynn Green was born. Weighing in at 4 lbs.15 oz. and stretching 18.75 inches long.

On December 24, 2014, Hallie passed from her mama’s arms back into the arms of Jesus. Katie wrote on her blog that day, “Thank you, God, for allowing me to be Hallie’s mother. Although losing you, Hallie, is the hardest thing I’ve ever done, I would carry you and love you all over again in a heartbeat. I feel like the luckiest mom in the world. I love you.”

It is Hallie’s life and Katie’s willingness to learn how to walk in the dark that moved me from a place of empathy to action. In 2012 I began my journey, through my lens, into other people’s pain. That’s a strange way of wording it, I know, but it’s the only wording that makes sense to me.

I have been invited to document the sacred moments between life and death. There are days when I will experience the beauty of life and the gnawing sorrow of death, all within a matter of hours. I stand witness to a wide spectrum of emotions, at times, with people I’ve only just met.

The way to deal with painful emotions is not to get rid of them, it’s to sit with and in them, making the darkness conscious. Knowing that there will once again be light. Being able to experience emotion is key to paving a path to peace. To suppress it is toxic. The further we push it down, the more it festers until one day we can no longer bandage the gaping wound. Some cannot believe that the light will ever return. But it will. Healing is possible. I’ve watched it happen. However, to come to that place, one must be willing to wrestle the angel of darkness.

It is helpful to remember that grief is unpredictable. It shows up at the most inopportune times. It often comes without warning, when there are no Kleenex anywhere to be found and you didn’t apply waterproof mascara. It’s presence is often uncomfortable and frustrating. Even so, each time it appears there is something to be learned. Though the uninvited teacher, pain is not our enemy.

For those friends and family feeling helpless, may I offer some encouragement? There are 3 things you can do to help the one you love.
~ Be Present (Don’t avoid reaching out or taking something by and leaving it on their doorstep or in their mailbox)
~ Listen (I wish we could be more comfortable listening than speaking. It is a learned behavior. When wanting to make someone feel important, listen intently to them.)
~ Be okay with “uncomfortable silence.” (Silence is beautiful when we consciously befriend it.)

If you are currently learning to walk through the darkness, may I speak these truths into your heart?
~ You are not alone.
~ The Creator of the Universe knows you by name. He formed you, piece by piece and therefore sees you and hears your cries.
~ Jesus himself promises that those who mourn will be comforted. (Matthew 5:1-14)
~ You have permission to lower the bar.
If you don’t want to go to that holiday party, don’t go.
If you find your eyes welling with tears while walking down the grocery store isle, it’s okay to walk away from your cart and leave the store.

We must embrace the seasons of darkness just as we long for the seasons of light. To have one without the other leaves us lacking perspective and appreciation for either.

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Was this post helpful? Do you have anything to add about seasons of grief? How can we pray for you? How have you been encouraged through pain? Feel free to leave a comment and we will respond.

If you’re in need of encouragement, click here for a fantastic message from Joel Thomas.
To hear the song inspired by Hallie’s life, written by Casey Darnell, click here

Oh my soul

Today started out like any other.
Get up.
Make coffee.
Eat breakfast.
Wake the boys.
Make lunches.
Go back upstairs to get the boys up.
Pack their backpacks.
Yell from downstairs for the boys to come eat or go to school hungry.
Go back upstairs.
Get dressed.
Go back downstairs to ensure the boys are eating and hurry them along getting dressed.
Get on our way to school and work (after a few other steps).

And then…out of nowhere….there she is…filling my thoughts.
The clouds in the sky, the sun hitting the early morning pavement. All of it reminds me of my friend who passed away only a few short months ago.

I think of Wyatt, her son, on his first day of school. He’s in 1st grade…just like my son. His daddy packed a picture of his mom in his backpack to show his friends. He looks just like her.

I smile at the picture of Bradford as she holds her teacher’s hand on her first day of preschool. She’s so beautiful in her blue dress with her blond hair pulled back and backpack on one shoulder.

I want to scream and cry and pound my fists on the ground. When I think of how badly she wanted these precious children and how she went to any lengths to give them life, I want to vomit at my hypocrisy and how nonchalantly I became pregnant even when I didn’t want to be (or so I thought). All that I took for granted and still do. All of it is put into perspective when I think about her.

Elliot passed away on a Monday in May and ever since then I have carried around letters for Wyatt and Bradford. Letters that I intend to send everyday, but never do. Letters that talk about the beautiful person that their mother is and how she not only showed love, but also lived it. Letters that make me weep just thinking about little hands opening them up to read.

Today…I’m not okay. I feel all knotted up inside.
Today, my heart breaks for a young husband aching for his wife and two beautiful children with only memories of their mother.
Today, the world is cold, and its demands relentless.
Today, the sun is hidden by the clouds and I want to close the blinds and stay inside.

I miss my friend and all of the time we didn’t have because of all the time I thought we had.

Posts written while walking through Elliot’s journey:
Girl of little faith…Why do you doubt?
When Cancer is no longer a Stranger
When the monster returns, Thy will be done
A Father’s Love
In the midst of the storm
A Tribute to Elliot
Saying Goodbye
21 Days Later
Finding God on the Farm
Five Minute Friday: Beyond
No more pain
Memorial Fund

The Day I met Hallie…

(I began writing this on Tuesday evening (the 20th) only hours after meeting the newest edition to the little Green family. I have since struggled with whether or not to post it. It is an up close and personal look at my heart and that feels scary.
After several of my friends who don’t know Chris and Katie said that it would give them a better understanding of the whole situation, I decided to share it.
)

Hallie Lynn Green entered the world via c-section on Monday, December 19th, weighing in at just under 5 lbs. and 18 inches long.

Those of us who know and love this family were unsure what to expect. Buckhead Church was on high alert all day as we waited for updates. The air was somber as there were so many uncertainties.

No one anticipated that Hallie would enter this world the way she did. She truly is a miracle. The only way I can tell you about the experience (through my own eyes), is by writing Hallie this letter.

Dear Precious One,

You are so strong. There were many expectations set for you and you have exceeded them all! You are so amazing!

I had the honor of meeting you today.
You are beautiful.
You are a fighter.
You are light in a dark world.

I, along with so many others have been praying for you since we first knew of your existence in your mother’s womb.

I spent many days praying for a miracle, that the doctors were wrong, that God would show off by defying all odds.

I prayed that you would be healthy and whole.
I pleaded with the Father for what I thought was the happy ending.

He had other plans.

You are a miracle, Darling. You are tangible evidence of a God we can’t see, but trust is there. You are the product of faith lived out.

As I looked at your perfectly round head that fit in the palm of my hand, I marveled at this tiny masterpiece that God had knit together. How silly of me to think that my plans were better than His! How utterly foolish to pray anything other than, “Thy will be done, on earth as it is in heaven.”

His ways are not my ways, little one. I can say with great certainty that He knows the end of the story.

At times I want to turn the book to the last page so that I am not surprised by the ending, but that is not how the Master works. The story unfolds as it’s happening and He is never surprised.

Let me tell you a little bit about your mommy. She is one of the bravest women I have ever known. She has shown us all what unconditional love really means. From the beginning, her faith never wavered. She has been a testimony of faithfulness, trust, selflessness and grace.

She trusted the Father implicitly. As her belly grew and people would ask about gender and due date and all of the things they tend to ask a perfect stranger, your mom would smile and say, she’s a Christmas baby.

She has an immeasurable amount of strength and courage. It is evident, my darling, that you too have an immense amount of courage and strength. Thus giving you the nickname “Little Fighter.” That’s what we call you in our house. The boys came up with that name. I think it’s perfect.

I couldn’t get too far into this letter without telling you about your daddy too. He has been strong for you, your mom and your sisters. He has exuded confidence in the promise of God’s word. He has documented, through some amazing pictures, your development in your mother’s womb. He has prayed for you since your conception.

It is not without difficulty that your daddy has walked through this. Men, by nature, are fixers. He could not “fix” this. He could not ensure your safety, he could not plan further than the 24 hours in front of him. He could not protect your mommy’s heart from the uncertainties of the day.

So he did what he knew he could do. He provided a safe place when your mommy needed to cry. He offered stability in the midst of uncertainty. He trusted God with a child that he knew was His to begin with.

There have been many, many tears. These tears encompass the entire emotional spectrum. Disbelief, anger, sadness, acceptance, happiness, confusion, lack of understanding…the list goes on and on little one and it will continue to grow.

Here is what I know, at the end of the day, the Father’s hand has never left you.
As I sit here pouring out what has been so difficult to verbalize, I ask the Father for wisdom and discernment. I ask Him to guide me in the coming days as I selfishly wish for a “Hallie update” every 5 minutes. I ask that He help me when I don’t know what to say, not to say anything at all. There is often times understanding in silence.

You are a blessing, Precious One. A gift. A beautiful example of what God can do when we listen and accept His will for our lives. You’re mommy has taught me so much about what real faith looks like. For that, I am eternally grateful.

There are people on this earth, those who will never meet you or your family and yet they will be in heaven because of the impact that your life has already made.

As I close this letter, I am listening to the rain hit the leafless branches on the trees, as it pours from the sky. I believe that God acknowledges the heaviness of heart in different ways. I would like to think that today, He is showing me in a very tangible way, that He is acknowledging mine.

Love and Light,