(Guest Post) 3 Lessons I Learned from a Catheter

This post is my father, John Riley‘s, words. If you’ve heard him speak you will be able to hear him within these writings. I hope he will continue talking about the lessons he’s learning through his personal journey into grief that began in the Fall of 2015 after the sudden death of his brother, Buddy. As long as he keeps telling stories, I’ll keep typing. 

Our hope is that these raw renderings will provide some much-needed relief and hope to those who are new to pain and loss. The ones among us who suffer silently while wishing for the person who understands to share their experience so they can say, “Really? Me too!”

I would encourage you to listen to the newly added audio with dad reading the post. Hearing a story read by its author gives it the ability to come alive. It will also give you a glimpse into why he is such a gifted communicator.

CatheterWhen someone in a white lab coat with the letters M.D. on the end of their name that’s stitched on the pocket, starts talking about you and a catheter in the same sentence, it’s sobering.

Once you get to thinkin’ about the reality of the proposed solution for what you hope is a temporary problem, it can really getcha down.

So… you have conversations… with said catheter and you get real honest.
It may sound something like this, “You and I are not going to be friends but, we’ll put up with each other as long as we have to and then we’re through!”

For me, it was only a month.
For many, it can be the rest of their lives.

Now y’all, that’s serious.

I don’t mean this to be too light hearted. It’s just that, trying to learn from it was better than cryin’ and cussin’ and carryin’ on… I suppose.

So, here are three things I learned from my catheter.
Excuse me, THE catheter.
I never wanted to own the thing.

1.- Pain can have benefits… if you let it.

Well, shoot! It’s hard to say what the benefits are because I can’t really think of many, but mainly you appreciate times of no pain.

After two weeks when I was told by my doctor (who is absolutely fantastic), “Sorry, we have to wait another week and another test.” I was upset. I had to process it.
It was only then that I could be thankful for this thing, discomfort and all, making it possible for me to heal inside.

So, I was extremely grateful that I was improving and that the greater percentage of my body was pretty healthy.

I also found gratitude for whoever invented the catheter. (That sounds weirder than I thought it would.) But seriously, I got really thankful for all the lives this person saved, including mine. Without this dang catheter, I would have already exploded five times over! Now, that’s enough to make even me grateful.

2.- Compassion has been defined as entering into the sorrows of another person and thereby showing mercy. I think that’s the way it goes?

How could I possibly enter into someone’s sorrow when I had never had the same sorrow?

I have been through the deaths of… well… everybody in my family older than I am, but this was my first time with a catheter. Now I can really feel for someone who has to have this great invention for a day, or for life.

Also, it teaches me that even though I don’t know personally what someone else is going through, I can know that it’s hard… even though I’ve not experienced the same thing. I thought I understood what it meant to be empathetic, but I’m not sure I ever truly have… before this. I hope that I will never again be unconcerned about another person’s problem.

3.- Make adjustments

By this, I don’t just mean which leg to put the bag on… but everything… well almost everything, you’ve done for many years.

Here are just a few that I have learned… fast… ’cause I didn’t have a choice.

Sleeping – don’t move around much. Get accustomed to sleeping on your back and your side. It’s not bad… except for sometimes… when it is.

Shower – unplug, clean, replug, dry… always makes ya feel better.

Dress – got me a whole new set of underwear, relaxed and unrestricted.
I didn’t realize boxers could be so comfortable! Wear ’em all the time now.

I have some that look like shorts, but the other day at my little community bank I go to, my friend the loan officer told me he could tell they were underwear. Oh well…

Loose pants are my friend. Especially sweat pants. But on days when the temperature in Alabama is 85 degrees, it looks kinda weird. So… I just stayed at home a lot.

Walking – was sometimes pretty easy, annnnd sometimes not.
Most of the time it felt like I was walkin’ with my legs spread like I just got off a horse. Nobody seemed to really notice except for one friend who did say to me, “Why are you walkin’ so funny?!”
“It’s a long story!” I thought to myself. I have lots of conversations in my own head these days. Know what I mean?

Exercise – wasn’t on the agenda. Every day made me look forward to the time I could really start back exercising and made me feel a deep concern for those who never can.

So, the catheter has taught me to be open to learning new ways of doing things. As I get real close to being 70 years of age, it makes me realize I want to keep growing.

Considering these three things, I hadn’t really thought of it, but maybe the catheter was my friend? However, I’m not gonna have it framed and hang it on the wall. (Can you imagine?! Yuck!)

What are you going through that people can’t necessarily see, but is making a huge impact in your everyday? Has it taught you a kind of gratitude that you never knew you wanted to learn?

The Heart of the Prodigal

Tomorrow is a big, milestone birthday for me. 40 years. I have spent the last several weeks reflecting on the journey. Where I’ve been, where I am, where I’m going.

A huge part of my story is the journey through alcoholism and a decade long battle with an eating disorder. In this conversation with my dad, I ask him what it was like being on the other side of me when I was living my life as his prodigal daughter. Was he afraid? What made him keep pursuing me? How did he release control of me? What would he tell others going through this now.

 

13 Reasons Why I Don’t Look Like An Alcoholic

JoyOn October 19th, 2015, by the grace of God, I welcomed in 13 years of freedom from the dependence on that which once enslaved me, alcohol.

When given the opportunity to share my story I always hear the same statement from at least one listener with a confused look on their face, “…But…you don’t look like an alcoholic.”
My response remains the same, “What does an alcoholic look like?”

Knowing full well that I have my own mental image of what an alcoholic looks like and it’s motivation for me to never go back to the life I once knew.

Her hair is matted and her clothes unkempt.
There are deep creases in her face from years of neglect.
She wears her wounds, making no attempt to hide them.
All forms of dignity have been stripped away.
She appears to be around 60 years old when in reality she’s 42.
She looks…well…tired. And she is.

Her children, if any, have long since given up on her and moved on with their lives.
The family she once knew has disowned her.
The church has overlooked her.
Society has pitied her.
Friends have deserted her. (They had no choice really. She stopped trying years ago.)
She’s an inconvenience, with bad teeth, no concern for personal hygiene, flammable breath, and a reputation that precedes her.

People say things without regard for her humanity, like, “Why haven’t her foolish ways killed her yet? She’d be better off dead and so would everyone else.”
Or, “She probably drinks mouthwash or rubbing alcohol. What a waste of space.”

Is my description harsh?
Have you ever seen an alcoholic in the grips of their disease?
To say it’s ugly is an understatement.

Throughout these years of recovery, I have visited treatment centers, held the shaking hands of the one in detox, claimed my seat in the rooms of A.A., accompanied a scared mother to a court hearing, listened to teary family members nightmares of living with an active alcoholic, and attended too many funerals for the seemingly hopeless one who never saw their 30th birthday.
I have seen what my future could look like if I allow my disease to dictate the direction of my life. Quite frankly, it scares the hell out of me. I hope it continues to scare me enough that I never pick up that first drink. That’s where the stronghold begins. The very first drink.

It’s a bummer. I don’t want to be an alcoholic. I didn’t grow from a little girl to a young adult dreaming of one day being a blackout drinker. I never aspired to be dependent on alcohol.

Not once did my parents say to me, “Now Joy, strive to be the best alcoholic you can be.” But I definitely gave it my all for several years. 

The reason I don’t look like your stereotypical alcoholic is because;
1.) I’m not homeless
2.) I’m a wife, mother, and productive member of society, and most days I’m pretty dang good at it.
3.) I have all my teeth (some natural ones and some designed by a dental artist).
4.) I’m obsessive about hygiene.
5.) My family is still speaking to me. Some of them actually like me.
6.) I have incredible friends who know me and aren’t embarrassed to be seen with me in public.
7.) I love and care for my children.
8.) My children love me, except when I’m driving them crazy.
9.) I don’t willingly participate in self-destructive behavior.
10.) I pay my bills…on time.
11.) I am of service to others and I love it! It’s one of my favorite things to do.
12.) I’m not a liar.
13.) I have a relationship with my Creator that everything else in my life centers around.

Most of the things listed above were not true of me 13 years ago. It has been a journey of faith with unpredictable twists and turns. Trust, especially in close personal relationships, has been earned and restored over time. I know and embrace the meaning of “Amazing Grace.”

We all have something in our lives that wants to destroy us. Mine happens to be alcohol. Maybe yours is food or sex, compulsive shopping or depression? No matter what it is, you know that the moment you become complacent in this particular area, you’re in trouble. There is a solution.

Do you know what the best defense against complacency is?
Gratitude.
I call it my complacency repellant?

I am more aware (than ever), going into this 13th year that I better be thanking God in the first few moments my eyes open and my lungs draw a sober breath. Before my feet hit the floor, praise must already be on my lips. It will be the first thing on my tongue in the morning and the last thing I taste at night.

Here’s the big takeaway… Beginning the first few moments of your day with a grateful heart has the potential to change everything. Guaranteed. If it works for me, it can work for anyone, anywhere, no matter what.

Do you believe that?

Need a place of refuge? Visit my friends over at People of the Second Chance. Get connected. Whether you struggle with addiction or you love someone who does, you don’t ever have to be alone again.

Think you have a problem with alcohol? AA is a group of individuals from all walks of life, who share the same ism. It’s a program to which I owe my life. Learn more in the Big Book of Alcoholics Anonymous 

Stepping Into the Light

My Friends,

I have been completely overwhelmed (in a good way) by the outpouring of concern and support from my last post. Thank you for caring so deeply and reaching out to ensure things are okay.

First of all, I am okay.
Yes, I was very sick.
Yes, it was a tough time.
I will be recovering for the next 3-6 months (according to the Endodontist) Every day brings improvement.

I think people were most surprised that I had not posted updates on social media about what was happening. That’s not how I do things that are as personal as this was.IMG_7549 I was in frequent contact with family and close friends who I knew would pray on my behalf.

I have received emails and comments from readers asking why I wouldn’t send a social media request for prayer and to let people know what was going on. The best way for me to answer this question and ones like it, is this…

It would have raised more questions had I posted in the middle of all that was going on, which is why I waited until I was feeling better and knew things were improving.
I’ve chosen to say, “No” to unnecessary drama. I love my online community. I appreciate everyone who reads my writings, but I will not participate in the kind of posts that alarm everyone for the sake of attention. That said, I feel like that is exactly how my last post was received by many.

Please hear me, I would not have posted anything about this most recent illness if I didn’t feel compelled to do so in order to help someone experiencing a similar struggle. Everything in me, that makes me human, was fighting the willingness to put my vulnerability and weakness on display.

Tulips from HarperGod is working in and around me in ways I have never experienced and while it’s incredibly exciting, it’s difficult to explain and often defies all logic, which is why I resist posting anything relating to my current spiritual state. Honestly, not everyone can process things of this nature and so for some of us, we keep quiet as to avoid appearing crazy. 

I let a little of my most recent “crazy” show through by documenting it for anyone to read. There was a time when I would have found it intimidating and terrifying to speak of the things that I believe and yet do not fully understand. I would have held back and resisted at all cost to avoid losing readers or being viewed as “strange.”

However, I have discovered that by stifling what is ready to be told, I am doing a grave injustice to my spiritual development. By silencing the obvious voice inside begging me to stop giving in to fear, I am removing all hope of going beyond a surface level relationship with Christ and moving into a deeply personal relationship with my Savior.

When I consciously remove the filter of skepticism, I am able to engage and be of the most use to others. And I have never been more sure that the purpose of my life and time here on earth is to be of the utmost use to others by directing them to Christ.

For me, that means admitting defeat. Exposing loneliness. Verbalizing doubt. It means claiming and living sold out to Jesus while recognizing my own humanity and shortcomings and being okay allowing others to see them as well.

I believe that the only way to walk into the light is to come through the dark. If I am always in light, I begin to see it as the norm and not as the blessing that it is. I stop sharing it with others, because I assume they already have it. There is no introspection or assessment and before long I am comfortable and complacent.

For me, for the life I have chosen to live, complacency is spiritual suicide.

My Darling Readers, I appreciate each and every one of you. I am so grateful that you would come here and spend a few moments of your life with me. I made a commitment from the very beginning to avoid any “small talk” and speak directly from my heart, no matter how raw. I will continue to. When you have questions or concerns, I welcome your comments and emails.

For those of you who I have not responded to personally about my last post, I hope this message will suffice. I never could have predicted the response from that particular piece. I’m grateful, if for no other reason, that it started a conversation.

I look ahead with great expectancy, believing that 2015 is a year for positive change and growth in ways we’ve not seen in recent times. I look forward to continuing this journey with you.

All Blessings,
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5 Reasons to Spend Time With a Mother and Her Young Children

JCP-8081I had the opportunity to spend part of my morning with my friend Melissa and her two children, Alex (2 years) and Eliana (10 months). I’m so glad I had my camera, because what I captured tells the story better than my words can.

1) Be curious. Wonder. Participate in life from the ground up. Don’t be afraid to mess up. You can always start again.

2) Ask lot’s of questions. (Even if you think they’re silly) Life is about learning and growing, no matter your age.

3) When having a serious conversation, eat chocolate… and laugh… throw your head back and let loose. (Chocolate and laughing make everything better.)

4) Play and Explore (Be resourceful)
Build a drum set from the buckets you just took off your head when you were being a robot. Play hide and seek with the nearest blanket. Sit in the rocking chair backwards.

“Mommy, wanna go look for giants with me?”
This question from Alex diverted me from all other conversation.
“Melissa, did he just ask you to go look for giants?!” I asked.
“Yes. We look for giants at least once a day.” she replied.

 

5) Take naps. Even if you don’t think you’re tired…
Feeling grumpy? Chances are, ya just need a nap.

Children are the best teachers. And most of them don’t even use words. They use action. It’s not always the right action, but it’s action nonetheless. They don’t sit around, talking about it and wait to see what happens.

When did we (adults) stop learning by doing?
When did we choose to walk away from a challenge and instead immerse ourselves in a Google search or social media for the answer?
When did we stop playing?
Why don’t we laugh with abandon?
When was the last time you sat on the floor, observing your surroundings?
Some of us need to revisit childhood. If you don’t like the one you had, ask someone to take you back with them to theirs.
Come back and tell us about your adventures in the comment section.

Other things I learned on my morning excursion…

A single shoestring can transform a toddler into a giant-slayer.
JCP-8049Egg cartons double as very hungry caterpillars.

Robots get hungry too.

What are you learning from your kids…or friends kids…or nieces and nephews, grandchildren or students in your class? Have any great pictures that tell a story? Email them to me at joycannisphotography(at)gmail(dot)com

Fear vs. Faith

I’ve heard it said that where there is fear, faith cannot exist. I don’t believe that to be true. The further into recovery I go, I find that the only real test of my faith is when fear is present.

Andy Stanley just finished the second week of the new series Starting Over. I cannot take photo 2notes fast enough to absorb everything he is saying, which is why I watch his talks multiple times.

He highlighted several incredible affirmations in this last message. One that really got me thinking and led to this post was, “You only make peace with your past by owning your piece of the past.” Isn’t that profound and yet simple. Owning my piece of the past.

We all want peace in our lives. There is no better peace than that of reconciling the past. I never thought those two words (peace and past) could be used in the same sentence. BB

When I first stepped into recovery the thought of facing some of the unthinkable things I had done in my past was too much and almost kept me from ever getting sober. It was one of the most difficult things I have ever done. And I had every excuse known to man not to complete this task… “What if someone finds this notebook with these things in writing and uses it against me?”
“What if I die before I can go through this process with my sponsor and this is how people remember me?”
“What if my fiancé finds this and realizes I’m ‘damaged goods’?”

Fear. Fear had kept me bound for too long. Fear had kept me sick and spiritually paralyzed for years. Fear was keeping me addicted, drunk and compromised.

Faith showed up. Not in the absence of fear, rather in the midst of it. Six months after starting cleanup on the wreckage of my past, I sat down with Lia, my sponsor and 5 hours later we set those pages on fire and watched them turn to ashes. That was on a Fall California day in 2002.

I remember feeling the ash between my fingers. I couldn’t see what was next. I couldn’t see myself functioning as a productive member of society. I couldn’t see the plans that had already been laid out for me. Then God

He sent Lia into my life to save me from self inflicted doom. I could have missed the many ways he was protecting and guiding me. She knew what I didn’t know at the time, that everything really was going to be alright. I wonder if she knew just how much better than alright they would be? Andy says, “When you own it, you dethrone it.” He’s right, ya know.

So now, today, in this moment, I ask God to replace my fear with faith. I ask him to direct my thinking and use my story for his glory. I ask him to continue to make beauty from those ashes that I rubbed between my fingers all those years ago.

Don’t underestimate the Creator of the Universe. He has a plan and it’s always better, bigger, and brighter than mine.

What do you think? Can faith and fear coexist or is the one who is fearful lacking faith?

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To the Oldies, the Newbies and Those Inbetween

thank you I want to take a minute to say, “Thank you.”
To those of you who have shared my writings all over social media,
To those who have read and commented,
To those who are receiving notifications of new posts,
To those who aren’t afraid to disagree with me,
To those who I’ve never even met, but consistently send me encouragement,
To those who email me with desperate pleas for help with addiction, eating disorders or something else you know I have walked through,
To those who find community here…
It is such a privilege to share this space with you.

I love that we have comments from all over the world complimenting our stories. It’s incredible to read of the laughter and tears shed (sometimes in the same sitting) while reading posts and comments on these pages.

If you’ve been around here for any length of time, you know that I’m a egomaniac with an inferiority complex. Some days my feet never touch the ground, while other days my face never leaves the dirt. I am my own worst critic with an inner cheerleader. I fluctuate between feeling like a goddess and an ogre. I am either the happiest, most optimistic person in the room or the anxiety ridden pessimist who draws the blinds and sits in the dark.

Through all of the emotions, I have written. The one constant in my physical life has been the ability to verbally vomit when needed and find healing in the chaos. Through the journey of starting my own business, grieving the loss of someone close to me and walking into incredibly fragile situations with families I had never met, to document the last few moments of their baby’s life, I know I can come here, to this page and process.

I have been completely overwhelmed (in a good way) by the response to many of the things I write. Astounded that anything I have to say would resonate with anyone else and move them to positive action. Elated to find that I am not alone in any struggle.

I am so grateful to you for using what I know to be valuable, precious time, to be with me for a few moments. It’s a gift and one that I do not take for granted.

The days ahead are full. And though I can’t come visit with you as much as I would like, please know that I think of you, my beautiful readers, all the time. I pray for you and I thank God for you.

Thank you for investing in my story.

Love and Light,
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