Twenty-four hours with Asher

Many of you have followed Asher’s story. In my writings I said that it was Lindsey’s story to tell and she would talk when she’s ready.

Well, she’s ready. It’s beautiful…full of hope…an example of courage in the midst of horrendous circumstances. I have not changed or added to any of Lindsey’s words. They are directly from her.

I know she would appreciate your comments and sharing with others who could be positively impacted by her story and Asher’s life.

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“As Joy so beautifully and eloquently wrote, my son Asher Knox, has a story. Our family has a story because of this miracle baby. Anyone who met our sweet precious boy, has a story…like Joy does. It’s because most people can’t tell stories of angels because they never meet one. I grew one inside me for 35 weeks and 3 day.
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Some outsiders may say Asher’s story is one of heartbreak, one of tragedy and that it has ended. I can see how that can be a thought as I would be lying if I said those thoughts never entered my mind. But when it comes down to the truth, Asher’s story is one of all-consuming love, a will to fight, and down right determination.
3F9B9571I will not go into the 9 months of details, but what I will share is that my husband and I found out when I was 15 weeks along , that Asher had a form of Skeletal Dysplasia—aka dwarfism. Since it was caught so early on, the many doctors I saw were confident that it was a lethal form…meaning IF Asher made it to term, he would not breathe and would die very shortly after birth. We were given the choice to terminate at that point, which is an awful place to be for anyone…PRO CHOICE or PRO LIFE. You are deciding the fate of your child to a certain degree at that stage.

I was never one of those people who voiced their opinion on PC vs PL as I figured I would never be in that position and I could see arguments for both sides. However, when it came down to it, we felt that if God didn’t want us to have Asher, then why allow us to conceive him? If he was not meant to be, God would end the pregnancy at some point but we could not bear the thought of stopping our child’s heart by choice. If he were to go, it would be when it was his time.
IMG_6172Fast forward to May 26, 2013 when I gave birth to the angel inside me. I had no expectations but hopes that I would be able to hold my son and have him look at me long enough to know I was his Momma. I got that moment. I got not only that one but 23 hours and 45 minutes of moments. Each of those seconds I spent with Asher were not filled with tears, but of hand holding, hair smelling, belly kissing, storytelling, and more cuddling and group praying than I can count. Because of Asher, my husband, Asher and I were able to feel more love from family, friends and strangers than I could EVER begin to imagine. We felt very blessed and still feel blessings entering our lives each and every day.
3F9B9263Yes, I said BLESSED. You may be thinking, “Why does this woman feel blessed if she carried her child to term, only to say goodbye less than a day later?” That’s just it. I had a day. Actually I had almost 36 weeks of enjoying ultrasound photos and kicks and somersaults. I got to watch my belly get bigger every week. I was able to be a MOTHER. How many people never get that opportunity? I truly believe there are many women out there that cannot get pregnant or carry their own child, and if given the choice, they would take 24 hours versus nothing.
3F9B0101To quote my favorite movie Steel Magnolias…..”I would rather have 30 minutes of wonderful than a lifetime of nothing special.” I have watched that movie easily 75 times in the past 20 years. How ironic that that quote would be something I would experience and believe myself when my son was created.

So what is life like now after Asher left to fly with the angels? It is tough, no ifs, and or buts about it. Actually tough is a kind way of putting it. Grief is a feeling that cannot be put into a definition properly. It consumes you at certain points. It hits you when you least expect it. Just when you think grief has left the building, it becomes the act on the main stage. I miss my buddy, every single second of every day.

Never would I have thought I would welcome the heartburn, the painful feeling of pressure from him pressing on my organs, the Gestational Diabetes and pricking my finger 4 times a day. That sounds like bliss because HE was with me, safe and sound.

I realize there will be no rocking to sleep, no report cards, no chances for me to leave notes in his Toy Story lunch box. My husband and I will miss out on teaching him to ride a bike and kiss booboo’s. No homecoming dances, no first haircut, no cliche Easter bunny and Santa Claus pictures. That’s the stuff that hurts the most~the things not only we, but Asher will miss out on.

I know I will see him again and that he is waiting patiently for us. This life is temporary and I am comforted knowing that at the end of the day, I have an angel baby that I will spend eternity with. I would never have that opportunity if we didn’t choose the road less traveled….carrying to term.

Again I say, I AM BLESSED. Everyone has darkness in their lives, but there is also light. You just have to look for it …or be open to it. My darkest days did not kill me. They may have knocked me down and I still have to take it one minute of every day at a time. But I choose to be happy. I choose to honor my beautiful son Asher by not seeing his life as a tragedy or one that has ended.

His story is just beginning. And so is mine.”

When Beauty is a Beast

I am currently mentoring several young women who are entrusting me with their story and a place in their journey. I’m not even sure how it happened, nor do I feel equipped to mentor anyone, but God doesn’t call the equipped, He calls the willing and provides the equipment.

To be honest, it helps hold me accountable for my thoughts and what I’m telling myself. I think God brought these young ladies into my life as much for me as he did for them… maybe more.

It’s no secret that my relationship with food and exercise is less than ideal. For those of you who don’t know, imagine a really nasty divorce from someone who tried to kill you, but you have to live in the same house with them after the separation. That’s a pretty accurate depiction.

I do great most of the time, but when the body image monster sneaks up on me, it does so with a vengeance. I go from being comfortable in my skin to feeling like the reflection in a fun-house mirror. Feelings are constantly changing, so I have to hang on and wait for the change. It’s hard.

The other day I was walking through a department store looking at the clothes. Remembering when I fit in sizes much smaller than the ones I wear now. I felt myself getting negative the further down skinny lane I strolled. Years of excuses flooded my mind.
I had an eating disorder so I have to be careful about exercise and restricting my food.
I’ve had 3 children with the last one being a c-section. My stomach will never look the way it did before.
I gave up alcohol, I’m not giving up my Starbucks drinks.
If I have to go without chocolate and caffeine, I will not be of any use to anyone.
And so it goes. The mental cyclone.

And then, I think of my girls. The ones who have cut marks into their skin with razors, stuck their finger down their throat to purge the pain, starved their body in hopes of starving the monster within and numbed loneliness with substances. The ones who count on me to speak wisdom from my life experiences into their heart and mind. I think of their faces and their fragile image of self. I think of all the times I talk about being comfortable in my skin. The fact that I have been chosen to speak truth about their incredible worth is confirmation that I cannot go down the road of ego-induced thinking. I have to continually humble myself before the Father and ask Him to speak what is true directly into my mind.

I also have to be vulnerable and honest about the fact that I still struggle. What better way for the evil one to derail our ability to positively influence others than by attacking our self-worth? There is a truth that never changes, “My Creator knows me and He calls me by name.”

I want to combat my extreme tendencies with consistent patterns of self-improvement. It’s difficult and I cannot do it alone. I have armed 3F9B6448myself with women who I know will respond to my irrational thinking with truth and love. Women who will come around me when I need wise counsel. Women who empathize with my circumstances. Do you have a woman like that in your life?

We all need community, Beauties. It can mean the difference between life and death. Mental, emotional and spiritual death, can be far worse than physical death. God did not create us to go through this life alone. Jesus had 12 close friends who went everywhere with him. Isn’t that a community?

I want to encourage you to reach out to a trusted source this week and speak your fears out loud. You will be surprised how much power is relinquished when shared with another. Do you believe me? Try it. It might just change everything.

Baby Asher

Many of you have asked me the story behind the cover picture on my Facebook page. I want to tell you. I want you to know who Asher is. Honestly I haven’t had the words to adequately describe the experience.

So, I wrote him a letter in hopes to honor Lindsey and let her son know what a remarkable mother he has.

Today marks one week since baby Asher was born. He lived outside the womb for 24 hours. In that time, he was adored by all who were fortunate enough to meet him. No one treasured him more than his mother, Lindsey. I will never forget following her hand through the lens of my camera as she gently ran her finger along the contours of his little frame. She didn’t miss a single detail. She made sure she knew every line in his palm and wrinkle in his foot. She breathed in the smell of his skin. She delicately touched his head, feeling his baby soft hair beneath her finger tips. She memorized his face. It was one of the most beautiful things I have ever seen.

I am one of the fortunate few who met this special child and told him how precious he was. I will not go into details about the time I witnessed of Asher’s life on this earth. It’s not my story to tell. When Lindsey is ready, she will tell it and eventually I will write more of this little one who left such a huge imprint on my heart.

Asher Knox MartindaleDear Asher,

One week ago, today, we were all anxiously awaiting your arrival. I had met your mom and dad only the day before, but this experience would bond us for a lifetime.

From the moment you came into this world, you were adored. Your mama had a head start on the rest of us. She had been feeling your kicks and movements in her belly for months. You were her constant companion. She loved you long before seeing you.

I had the privilege of capturing your daddy’s face the first time he saw you. He loves you so much, precious boy. It’s such a difficult thing for a dad to watch his child struggle, knowing he cannot step in and save the day. Because he would have, darling. He would have traded places with you in a moment. You could see it all over his face.

Here is what I want you to know, little one. Your mom is so brave. Her courage is more than admirable. She has fought for you from the very beginning. She knew that medical facts showed little chance you would survive. She heard the doctor’s words and knew the odds that were stacked against you. She also knew that she would carry you, in her belly, as long as she could. She would give you life and if only for a moment, hold you in her arms, sheltering you from the coldness of this world, whispering lullaby’s in your ear.

I was witness to incredible love, sweet Asher. Your mama loves you extravagantly.

She wants all who know her, and those who don’t, to hear your story and know your name. You were a little champion. I am so, so grateful to have met you. You were wonderfully made and your life has great purpose.

Your mommy and daddy miss you, darling. There are so many tears. There are also beautiful memories of a day filled with…you. Your life. Your story. Your purpose.

Your legacy will continue. Your name will be spoken in many circles. Your memory will outlive us all. Those who know your mom are forever changed by her courage, faith and unconditional love.

You are beautiful. You are loved. You are chosen. Now may you rest in the arms of the Savior who spoke life into being. You are safe. You are well. You are home.

Love and Light,
Joy
(the girl behind the lens)

Cleansing through tears

Dear Elliot,

In just a few days we will hit the 1 year mark since your last day on this earth. Only, it’s Elliotwkiddosgoing to be a day like any other in the last 365 days of grief.

Every day people come to the blog and read the posts as I processed through those days of uncertainty. Your story of unwavering faith in the face of unthinkable sorrow is reaching others and will forever be shared. Every day I am able to pray for Chris, Wyatt and Bradford as you are in and out of my thoughts.

I was telling someone your story the other day. I don’t even remember how it came up? I didn’t cry. I was very matter of fact. I haven’t cried in a long time.

What I have been is angry. Not at God. At cancer…at the treatments used…at the what~ifs. I’ve been too angry to cry. But today I watched this video about a 17-year-old boy named Zach and the legacy he left behind when he passed away on May 20, 2013 (his story is documented below.) I slid down into the place between the overstuffed chair and the wall of windows and I wept.

I made up for months of no tears. It’s the same spot I sat more than a year ago and begged God for a miracle. It was my go to place when things overwhelmed me. I haven’t sat there since last year while talking to Elisabeth on the phone a few days before you died and knowing what need not be said.

El, my chest has literally ached for days. My heart hurts. Though I will never know how widespread your influence has been, it is vast. I do not understand the ways of our mysterious God. I don’t even know how to finish the letters I’ve started writing to Wyatt and Bradford.

What I know for certain is that I don’t want to find out I’m dying to really start living. I want to live. I want to love until it heals. Laugh until my sides hurt and my lips shake. Dance around my living room until I’m out of breath. Drink in the sunlight, feel summer raindrops on my skin. I want to live, El. You taught me that.

I want to dream big
Never stop seeking
Brag on a God who is beyond explanation
Reach the unreachable
Believe in Heaven
Heal the hurting
Capture beauty and give it away
I want to know when this day is done that I am more than satisfied with the goings on.

I want to play more
Give more
Sing more
Pray more

I know you wouldn’t wish anger for any of us left here to grieve. Every time I see a “sky cross” I grasp the visual evidence that God gives me the strength I need when I need it.

I love you friend. Thank you for living with such grace and beauty. Thank you for showing everyone who witnessed your courage during illness that God is good even when it doesn’t feel like it and he has a plan and a purpose for our lives.

Blessings and Light,
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Related Posts:
Saying Goodbye
A Tribute to Elliot

Five Minute Friday: Song

The following is a song that I have been listening to on repeat for the last several days. When the world gets loud, I want to hear His voice.

Here’s my heart Lord
Speak what is true

Here’s my life Lord
Speak what is true

I am found, I am Yours
I am loved, I’m made pure
I have life, I can breathe
I am healed, I am free

‘Cause You are strong, You are sure
You are life, You endure
You are good, always true
You are light breaking through

You are more than enough
You are here, You are love
You are hope, You are grace
You’re all I have, You’re everything

Click to hear David Crowder singing the album version of “Here’s My Heart” from the Passion CD “Let the Future Begin
http://www.youtube.com/watch?annotation_id=annotation_144185&feature=iv&src_vid=p3UxfvNbBx0&v=lTxED4_j8kQ

What are you telling yourself these days? Are you listening to the world or to the one who knows you best?

For the Volunteer

Dear Volunteer,

I am a mother of 3 and have experienced every children’s ministry environment offered at Buckhead Church. I was watching Large Group in Waumba Land Sunday morning when years of memories came flooding in. As the children raised their hands in worship, I was overcome with gratitude.

I wish I had thanked you sooner. Only, I didn’t have the words. On this day, while standing in the back watching men and women, with busy lives, volunteer to surround our preschoolers with truth and light, the words came faster than I could process them.

UpStreet, thank you for welcoming and ushering in my 7-year-old with bed head and a half eaten pop tart in his hand. Little did you know, just 5 minutes before, I was sitting in my car contemplating not coming in. You removed the weight of the world in those few moments at check-in.

Transit, thank you for sacrificing your time to my confused middle schooler (now in high school) not only on Sunday, but for retreats, special outings and all the texts/calls/emails in-between when you were the only voice of reason. In those times when my words fell on deaf ears, yours were heard, felt and followed. You didn’t know that the weeks leading up to boot camp she had contemplated suicide. Thank you for praying that prayer with her on the last night of camp. You were able to speak hope in a way that I couldn’t. I wonder how many souls have been saved because of your investment?

Waumba Land, thank you for greeting my child with a warm smile at the door when he had arms crossed, furrowed brow and feet firmly planted outside the room. Thank you for playing referee when he was “the runner.” And the times you took his hand while looking at my worried face and said, “Go to service mom. We will be just fine here” as he screamed and kicked, were the days I got the most from the message. You didn’t know this, but when my alarm went off that morning I hit snooze and strongly considered staying in bed. Your interactions with my child motivated me to get up and out even when it felt like staying home was avoiding a battle.

Host Team, thank you for making sure I don’t get lost in the crowd. I have been attending for years but there was a Sunday, last year, when I must have looked lost because several of you welcomed me and asked if you could help me find where I was going. “No thanks.” was my response, but the fact that you took notice and offered to help meant so much. You didn’t know this but the next day my 36-year-old friend passed away 9 months after being diagnosed with ovarian cancer. She left behind a husband and two small children my kids ages. We had grown up together and I felt like part of my childhood was buried with her that day.

Parking Team, if maintaining a highly functioning team of hundreds to get people in and out of one of the busiest areas in Atlanta was an Olympic sport, you would, without a doubt, take the gold. Thank you for showing up, rain or shine, putting on a vest and a smile and waving your flashing wand. You may not know that more than once I have tried to use the excuse of “traffic” and my preschooler would say, “Mommy, can the ninjas in orange vests with lightsabers show us where to park?” What can I say to that? Out of the mouth of babes…

Facilities and clean up crew. Thank you doesn’t even seem close to appropriate. Wow, you have a tough job and you do it seamlessly. Without you, no other environment would function and thrive.

I know you hear how much you are appreciated from those in leadership. It’s one way I’ve rationalized not writing to you. I’m just a face among many. There are thousands just like me. Unfortunately, we avoid writing letters like this one because of fear. The fear that I will leave someone or something out. The fear of not saying what I really feel…of not being able to wrap words around the impact you have had and continue to have on the lives of those you don’t even know. The next few sentences sum up the essence of this letter.

You need to know that, because of you, my life is better. My children are better. My family is better. Don’t you see, your commitment to show up week after week is changing the world outside our door. It’s enriching lives and encouraging families towards each other instead of away. What you’re doing is being the change that most only talk about and rarely do. You are leading by example and because of that, people are being reached in ways that would not have been possible were it not for your decision to serve.

Evermore thank you. From the depths of my heart….I am truly grateful.

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Five Minute Friday: Comfort

Webster’s definition of comfort is this:
comfort |ˈkəmfərt|
noun
a state of physical ease and freedom from pain or constraint
• (comforts) things that contribute to physical ease and well-being
• prosperity and the pleasant lifestyle secured by it

Who wouldn’t want this definition for themselves as well as being this definition for others?

When I first read the prompt I didn’t think of a deep and meaningful post to write. Several words and sentences came to mind that represent my definition of comfort. Just thinking about them brings me relief.

ComfortPajama pants.
Fuzzy pink socks.
Drinking hot chocolate from an over-sized mug, filled with floating marshmallows.
The Disney Store.
The way my overstuffed sofa envelopes me for an afternoon nap.
Chris’ hands.
Starring at the star filled ceiling from my boy’s bed when discussing the day, before sleep sets in.
A familiar voice on the other end of the line when I feel lost.
Knowing that I’m not alone.

Five minutes go by fast! What’s the first thing that comes to mind when you think of comfort?